New Parents | Ways to Give | Membership | Affiliation Links

FAQ’s

How can I make an appointment for my child or adolescent at the Center?
What can we expect after we have our appointment date?
How long can we expect our appointment to last?
What happens during an appointment?
Can we take other family members with us to our appointment?
Do I need a referral to be seen at the Center?
What types of insurance does the EPDSC accept?
Can you tell me what types of resources are available through EPDSC?

How can I make an appointment for my child or adolescent at the Center?

To make an appointment at the Center, simply call the office at 610-402-0184 and leave a message stating you’re interested in having your child or adolescent evaluated. One of the office staff will return your call and obtain the information necessary to fill in our “intake sheet”.

Within a few days, we will mail out a packet that will include a brochure, cover letter, medical release forms, questioner, EPDSC membership form and self-addressed, stamped envelope. Please fill out the questioner as soon as possible and, along with a copy of the front and back of your child’s insurance card(s), return it to the Center in the self-addressed, stamped envelope provided. The medical release forms need to be mailed out to any physicians, specialists, therapists or educators your child or adolescent works with so that those individuals can send your family member’s information into the Center. After we have received your questioner, you will be contacted and offered an appointment that will be convenient for you and your family.

back to top»

What can we expect after we have our appointment date?

While waiting for your appointment, the Center will be receiving the medical records you requested from your family member’s primary care physician and specialists. We will also be compiling any IFSP/IEP information or therapists records you have asked to be sent to our office. Any questions you have between making the appointment and the actual day of the appointment can always be phoned into the office or sent via email. Please don’t hesitate to call with any questions you may have about your appointment or any of the forms sent to your home. Paperwork can be confusing and overwhelming!

back to top»

How long can we expect our appointment to last?

Generally, your appointment with our physician, coordinators and occupational therapist lasts approximately one and one-half hours. If you have questions or concerns that extend beyond the appointment time, one of the coordinators can continue to address your concerns or you can schedule some time for you to meet with one of the coordinators on another day. There is no fee associated with scheduling an appointment with the Coordinators or our Administrative Coordinator.

back to top»

What happens during an appointment?

The hour-and-one-half appointment time is dedicated to addressing your questions and/or concerns about your family member with Down syndrome. Before you come into the Center, our staff reviews the medical records so that we’re familiar with the issues on paper. The day of the appointment, we start by asking which issues are most important to you so that you leave with your concerns being addressed. A physical exam is completed and a consultation discussing the findings occurs. While we’re talking and reviewing the Down Syndrome Health Care Guidelines, our occupational therapist is screening your family member and will offer commentary/advice, if appropriate. The time passes very quickly!

back to top»

Can we take other family members with us to our appointment?

Absolutely! Part of the mission of the Eastern PA Down Syndrome Center is to educate the public at large about Down syndrome. Family members are often the best advocates and want to learn all they can about Down syndrome. Grandmothers and grandfathers, and aunts and uncles, and good friends have all attended appointments. Where young brothers and sisters are concerned, our feeling is that if you need to attend to the other childrens’ needs, you are missing out on information that may be vital to your child with Down syndrome. If your other child(ren) can be quietly entertained and non-disruptive, feel free to bring them along. You know your child better than we do. We strongly feel that parents get more out of an appointment when they are focused on their child with Down syndrome and not distracted by having other children in the room.

back to top»

Do I need a referral to be seen at the Center?

Coming to the Center is like seeing any specialist. If you need a referral for a specialist appointment, you’ll need a referral for your appointment at the Center.

back to top»

What types of insurance does the EPDSC accept?

The Center accepts almost all types of in-state insurance. You can always call our Administrative Coordinator for specific questions on insurance. She’s very knowledgeable and will be glad to answer all of your questions.

back to top»

Can you tell me what types of resources are available through EPDSC?

Glad you asked! The Eastern PA Down Syndrome Center has the most extensive Down syndrome library in the area. Our library includes books, videos and DVD’s. All of our materials can be taken out for two weeks at a time. You can call to let us know you’d like to come in and see our library, or on your appointment day, you may borrow any of our resources you’d like.

back to top»

Website designed by Blu Echo Design