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New and Expectant Parents

Congratulations and welcome! The Eastern Pa Down Syndrome Center (EPDSC) is here to assist you with any questions or concerns you may have at this time. Whether you have received a prenatal diagnosis of Down syndrome or you were informed at the birth of your beautiful child, the EPDSC is here to support you.

The birth of a new baby is, and should be, a time for celebration and feeling of joy. We realize that a diagnosis of Down syndrome can be overwhelming and you may be experiencing an array of emotions as you adjust to the news. However, we want to assure you that your baby is more like other babies than unlike. We encourage you first to welcome, value, and love your baby- to embrace hope for a bright future. Your baby’s needs are like all babies- to be loved, to be fed, to be cared for each day. Next, we encourage you to become informed about Down syndrome. Take some time to peruse our website and other current resources and digest only that information which is helpful to you.

By now you have probably heard from your physician about some medical conditions that can accompany a diagnosis of Down syndrome. There are many physicians, professionals and parents to help you and your baby throughout your journey- some are right here in our center! One thing your doctor can’t tell you is the sheer “will” of your baby and the newfound strength of you, the parents.

The EPDSC has dedicated parents and professionals that are more than willing to talk with you at your convenience. Whether you prefer email, phone, or a personal visit, the resource is there. Please do not hesitate to contact the Center- we have been there and are living our typical lives to the fullest.

We want to wish you the very best, and look forward to meeting you and your family!

Sincerely,
The EPDSC Staff

New Parent Support Group

Organizers: April Saboe & Tania Hemsley
Email: dss.epdsc@gmail.com
Phone Number: 484-714-0DSS

New Parent Support Group is helping to support families prenatally and postnatally diagnosed with Down syndrome.  Our goal is to help families through the happy and difficult times when emotions already run high.  We will contact you throughout your pregnancy and follow you through your baby’s first year of life.  We are a group of mothers and fathers who have recently been through many of the same joyous and difficult situations you may currently be going through.  We hope to lend an ear and help provide information that can help you on your journey.

Outside Resources:

http://www.ndss.org/Resources/New-Expectant-Parents/

Prenatal Diagnosis Resources:

www.downsyndrometest.org

Books:
Rising to the Occasion: Reflections on Choosing Naia
by Tierney and Greg Fairchild
Light at the End of the Tunnel
by Pamela Wilson, Special Needs Children Editor

Adoption Resources:

National Down Syndrome Adoption Network
www.ndsan.org
513-213-9615

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